Personal stories

Meningitis UK's vision is a vaccine to eradicate all types of meningitis and septicaemia. The driving force behind our work are the thousands of families who we represent who have experienced the terrible loss and suffering these diseases cause.

Here are some of the stories and faces which highlight the urgency of our mission to eradicate this disease and the devastation it causes.

 
Spencer Dayman Callum Adamson  

Spencer Dayman
Aged 14 months
It was the 1st November
in the early afternoon
when my wife Gloria
called me at the office
Read more...

Callum Adamson 
Aged 10 weeks
It was 4.30 in the
morning on 30th
December 1999, when
Callum woke up
Read more...

Dylan Stott
Aged 21 months
Saturday 6th August
2005 was a day which
started like any other. 
Read more...

 

     
Marshall Janson
Aged one year
Survivor
Marshall fell ill with meningitis
just days after his first birthday, causing him to lose both his
hands and legs to septicaemia. Thousands of pounds have been raised to help the inspirational tot.
Read more...

Georgia Keeling
Aged two years
Strep A Meningitis
Toddler Georgia's death hit
the headline in August 2009
after doctors twice mis-
diagnosed her as having
swine flu.
Read more...

Ella Funnell
Aged 18 days
GBS Meningitis

Ella's parents were devastated
when their "perfect and
contented" baby daughter died suddenly at just 18 days old, less than 24 hours after showing any signs of being ill.
Read more...

     Amy and Finn
Taylor Hall
Aged 17 months
Survivor

Taylor's heart stopped twice
as she battled meningococcal
septicaemia and swine flu but
she's gone on to make a
miraculous recovery.
Read more...
Jaimie Skaife
Aged 20 years
Survivor

Sports student Jaimie was
found dangerously ill in
her bed at university. Her
housemate's quick-thinking
saved her life.
Read more...

Amy Kilpatrick
Aged 30
Survivor

Amy faced a frightening
time when she was rushed to
hospital with meningitis at
the same time as her young
son.
Read more...

     
Robbie Jones
Aged 23 months
Survivor

Little fighter Robbie has
captured people's hearts
with his bravery after losing
both legs to meningococcal septicaemia.
Read more...

Gillian Redman
Aged 31 years

Gillian was 28 weeks pregnant
when she fell ill with meningitis.
Her daughter Grace was born
as she fought for her life but
sadly neither pulled through.
Read more...

Amelia Dawson
Aged five months
Survivor
Doctors feared the worst
when Amelia was brought
into hospital but the hardy
youngster has pulled through,
although now suffers from
epilepsy.
Read more...
Ashley Scriven Corinne Rae Hill

Ashley Scriven 
Aged 7 years
Ashley was a typical fun-
loving mischievous boy
who filled the hearts of
so many people with so
much love.
Read more... 

Corine Rae Hill
Aged 11 years
The 2nd April 2001
started like any other
Monday morning, but
turned out to be the worst
day of my life.
Read more... 

Martin Finch
Aged 14 years
We were confronted
with meningitis very
suddenly with the loss
of our 14-year-old son
Martin on the 8th December
1999.
Read more... 

 Lisa Richardson  Kevin Leaver  

Lisa Richardson 
Aged 19 years
The day before Lisa
became ill we were at
the Metro Centre in
Gateshead, doing
some Christmas
shopping.
Read more...

Kevin Leaver
Aged 50 years
On the first day of the
new millennium my
husband and I walked
on Ilkley Moor.
Read more... 

Sean Coughlan 
Aged 12 years
Survivor
Some people are lucky
enough to survive meningitis,
but even then the effects can
be long-lasting, for both the
patient and their family and
friends. 
Read more... 

 Lisa Richardson    

Amber Joel
Aged 10 years
Amber Joel died at the
age of 10 in 2006 after
doctors initially diagnosed
a gastric infection.
Read more...


Eliza Grime
Aged 5 years
Survivor 
Eliza Grime, now five,
brought tears to her
consultants' eyes when
she walked out of
hospital after battling
pneumococcal meningitis.
Read more...

Helen Cadden
Richard Murphy
Aged 18 & 19 years

Teenage friends Helen
Cadden and Richard Murphy
were both killed by
Meningitis in 2001
Read more...

     
Helen Laing
Aged 24 years
Helen Laing, a caring
hardworking 24-year-old,
died of meningococcal
septicaemia, just four months
after qualifying for her dream
job as a nursery nurse.
Read more...
Kate Burke
Aged 20 years
Survivor
A- Level student Kate
Burke says she's only
alive because her mum
trusted her instincts.
Read more...
Lucy Hartley
Aged 20 years
Survivor
When Lucy Hartley,20,
fell ill with meningitis
she thought it was a
hangover.
Read more...
     

Lyndon Longhorne
Aged 9 months
Survivor
Lyndon Longhorne lost his
legs and a hand to meningitis
but he's now an inspiration to
thousands.
Read more...

Jamie Cowey
Aged 9 months
Jamie Cowey died in 2004
from meningicoccal
septicaemia, aged just
nine months
Read more...

Jacob Brown
Aged 6 months
Jacob had just learnt
to say his first words
when he fell ill, which
his parents put down to
teething.
Read more...

     

Jodie Savage
Aged 16 years
Survivor
Jodie battled to stay alive
when she was six-months-old,
now she reflects on what a
frightening time it was for her
family and how lucky she is.
Read more...

Liam Elliott
Aged 16 months
Liam was the apple of his
parents' eye, a bright and
bubbly toddler with everything
to live for, a real source of
joy to his family.
Read more...

Daniel and Lewis Wood
Aged five and two
Survivors
Watching one child battle
back from meningitis was
hard enough, but the Woods
had to cope with two of their
sons being struck down just
six months apart.
Read more...

 Hazel Southam    

Hazel Southam
Survivor
Viral Meningitis
Journalist Hazel Southam had
recently returned from an
assignment in Jordan in April
2009 when she started to feel
ill with flu-like symptoms.
Read more...

Taylor Westley-Smith
Aged 9 months

His parents thought he had
chicken pox but their
"beautiful boy" Taylor was
battling meningitis and sadly
died within 15 hours of falling
ill.
Read more...

Paige Ritchie

Survivor
Aged 9 months
Paige's mum will never forget the moment when her baby daughter's eyes rolled as she held her in her arms, just minutes before meningitis was diagnosed.
Read more...

     

Jessica Morgan
Aged 2 years

Jessica was misdiagnosed
with gastroenteritis and sent
home from hospital.  She
died the next morning.  Her
mum Kelly has been trying to
raise awareness ever since.
Read more...

Liam Newman
Aged 6 years
Liam complained of a
headache, was sick and
said his little toe hurt -
symptoms his mum Claire
now knows point to
meningitis.
Read more...

Lily Knott
Aged 19 days
Strep B Meningitis survivor

Lily was just 19 days old when
her parents awoke to find her
grey and lifeless.  They thought
she was dead.
Read more...
     

Gemma Drury
Aged 17 years
Survivor
Gemma hit the headlines in
July 2009 when she almost
died from meningitis after
doctors misdiagnosed it as
swine flu.
Read more...

Rebecca Williams
Aged 33 years
Survivor
Rebecca fell ill with meningitis
when she was 21 weeks
pregnant, which doctors
initially dismissed as a
migrane.
Read more...

Emma Mackay
Aged 32 years
Survivor
Emma had been feeling under
the weather for a week but
thought nothing of it, until she
could barely stand, was
confused and started acting strangely.
Read more...

     

Helen Kearney
Aged 16 years
Survivor

When Helen fell desperately
ill with the brain bug two years
ago, it initially left her unable
to walk and facing a long
recovery period.
Read more...

Elliott Thornber
Aged one year
Survivor
Elliott fell ill at just seven
weeks old, when a rash
covered his body in just
four minutes. Doctors now
call him a "superstar baby".
Read more...

Ewan Cooke
Aged six days
E.coli meningitis survivor

Ewan's parents faced seven
months of uncertainty after
he fell ill with an unusual
form of meningitis.
Read more...

     
Rory McNee
15 months
Pneumococcal meningitis 
and HUS survivor

Rory was fighting for life in
hospital when he was also
struck down with a rare but
severe condition which causes
kidney failure.
Read more...

David Coppin
Aged 19 years
Survivor

There were cheers of joy
when student David awoke
unscathed after being in a
coma for a week having
dramatically fallen ill.
Read more...

Aaliyah Wells
Aged four years

Aaliyah's family were proud
of their little princess and how
she was overcoming being
born without a hip. But,
tragedy struck when she fell
ill with meningitis.
Read more...

     
Liam Keeling
Aged 13 years

Liam was a fit and healthy
footballer, who fell ill with
swine flu shortly after his 13th birthday. The virus weakened
his immune system and he
was unable to battle the
meningitis bug.
Read more...

Alkin Ahmetaj
Aged nine years
Survivor

The speed at which he fell ill,
and the emotional rollercoaster
that was to follow, has made
his family realise just how
lucky they are that he pulled
through.
Read more...

Isabelle King
Aged 19 months
Survivor

Newspaper columnist Ray King described his family's anguish
when his granddaughter fell ill
with one of the deadliest
strains of the disease.
Read more... 

     

 

   

Meningitis UK would like to thank the above families and all our friends and supporters across the UK, who work so tirelessly to help us raise money to find a vaccine and awareness of how devastatingly quickly the disease can strike. We are confident that with the support of people like you, we will be able to put a stop to this awful disease.

Make a donation to support Meningitis UK's search for a vaccine, or find out how to get involved

If you would like to tell your story to help us raise awareness of meningitis, our Media Officer, Philippa Walker would love to hear from you. Please phone 0117 373 73 73 or email philippawalker@meningitisuk.org

 

 

We'd like to hear your story

Our media officer Philippa Walker has a special appeal for all of our readers:

"I'm always looking for families who would be happy to share their experiences in the press, to help raise awareness of the symptoms and let people know about the charity. We often get approached by magazines looking for case studies too, so if you think your story might be suitable for a feature please get in touch."

If you're interested in helping, or would like to write something for this page call Philippa on 0117 302 6195 or email philippawalker@meningitisuk.org.

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